Navigation Menu Icon

Digital THRIVE workshop feedback

Co-production event: Digital THRIVE – 23 May 2018 - Preston Grasshoppers

 

WHAT DOES IT LOOK LIKE NOW?

  • Fear from some staff to use technology
  • Lack of hardware IPADS etc for everyone working in the sector.Funding is needed to support this.
  • Not enough digital options offered to families
  • IT systems not supporting software
  • Not all organisations have social media platforms eg Twitter, Instagram or snapchat
  • NHS linking up with schools and colleges to help parents increase their learning around digital
  • Stigma – Young people don’t use it as it’s not ‘cool’. There is a worry their friends will find out.
  • Digital is an afterthought and not the ‘Golden Thread’
  • Consistency of care
  • Communication issues. Tools could help to be improved
  • Long waiting lists/times at CAMHS for appointments. (There needs to be something now whilst waiting for appointments
  • Parent/carer worries around apps and which ones are safe
  • Not equipped or have the skills to use digital technology
  • Information not clear enough
  • Education is not available around digital technology
  • Giving people labels before we help them
  • Can’t back the process of the care journey online
  • Not always able to see the same person
  • The NHS use text and email now, and this does not always work well
  • No NHS digital access
  • Loss of faith in the NHS
  • Long waits for information
  • NHS old fashioned and stagnant
  • Un co-produced
  • Unhelpful
  • Unprofessional
  • Digital is barrier and excludes some people
  • Finances are an issue
  • Other means to move information
  • Information isn’t clear enough
  • Schools can’t help until there is a diagnosis in place
  • Schools are not interested in using digital technology
  • Not given any advice into resources
  • Waiting times for school counselling is a long time (not offered digitally)
  • Gap in services of when young people are 16 – 18. Some fall in adult services some are young people services
  • People just refer to CAHMS when there are other places/support they could get from other places
  • Long waiting lists for support
  • Young peoples don’t always know why they are being referred and when they are they don’t always feel listened too
  • Not accessible
  • Hitting 16 and ‘moved on’ out of services or to other services
  • No clarity to young people and not sure why they are referred to organisations – we often don’t give consent
  • Young people given medication when they don’t want it
  • Disjointed
  • Lack of communication
  • Too complex
  • Thresholds are difficult
  • When you turn 16 there is nowhere to go
  • Cannot access services when they are needed
  • Only have 9 – 5 services
  • Disjointed – NHS doesn’t seem well linked together
  • 16 – 18 age gap of support
  • No immediate help unless in an extreme crisis.Young people want help before it reaches this point
  • Concerns around self-diagnosis and the ‘need’ for labels
  • No access to services for young people age 16 – 19
  • Inappropriate staff – young people are the experts of themselves not the professionals
  • Not allowed to use phones at school so can’t use the apps to help support us through the day
  • Consistency across the board
  • Options, not prescriptive, and person centred approach
  • Single point of access
  • Give a choice to the young person on who supports them
  • Clear channels of complaints and advice. Like a care navigator
  • Better preparation for the first appointment at CAMHS
  • Digital e – resource pack linked to symptoms, information and videos featuring young people’s vlogs
  • Options to interact better eg – texting
  • Famous people talking about their mental health. You tube videos used such as superwomanii
  • Education and Training for everyone (young people, parents/carers) embedded in the curriculum like sex education
  • Solution focused and not pathology for example how can we support your emotional well being
  • Increased digital access to support wellbeing
  • Helping young people have a better understanding about mental health
  • Communicate with people
  • Share information between services
  • Better relationships with doctors and counsellors
  • Helping people access support
  • Helping people get support before they get worse
  • More support for parent/carers
  • Use digital technology to tackle stigma
  • Positive promotion using real stories and relevant young people and age groups
  • Support networks connecting better
  • Less barriers getting rid of eligibility criteria
  • Terminology and abbreviations making language more accessible and easier understanding
  • Digital to compliment face to face and not replace
  • Would like online access to book appointments
  • Online advice on where and how to get help
  • Getting reports/peoples story sent digitally
  • Authentic and feeling genuine
  • Always involving Young People
  • Digital is a golden thread through all the projects
  • Move away from a 9 -5 service and making it more accessible
  • In conjunction with not instead of
  • Asking people ‘what is right with you?’ not just ‘what is wrong with you?’
  • Drop in centres to get support with digital
  • Online service to be available
  • Introduction to buildings and staff before arriving for appointments – access the information online
  • Vlogs from staff
  • Sign post to other organisations for support
  • Access when young people want it and when they need it
  • Link in with other youth services to utilise what they offer
  • No clarity to young people and not sure why they are referred to organisations – we often don’t give consent
  • Young people given medication when they don’t want it
  • Need to engage more with young people
  • Flexibility for treatment from text to skype to speaking to a person
  • I can go to one place to get help and they send me to the right place at the right time
  • Education sessions for school staff and teachers
  • Address bullying particularly within school
  • Parenting groups and adolescent equivalent to health visitors
  • Support for parents/carers o9f all age groups of young people
  • Easier referral process
  • Systematic issues to be addressed
  • Being aware of trends/influences
  • More online signposting
  • I can get help without being embarrassed about a label
  • I can get customised therapy
  • AI chatbook out of hours
  • I can get help any time
  • Electronic appointment booking so I have choices
  • Online chat rooms
  • Digital co-production of C&YP is an ongoing process
  • Training for all staff
  • All staff supported to deliver services
  • Social media platforms developed
  • Video profiling
  • Regular updates about changes to digital technology (quarterly meetings)
  • One set of information on YP is available to all agencies
  • All parents/carers can connect with support networks 24/7
  • General education on mental health
  • A good meaningful website
  • I know where to go to access help and support without barriers and stigma
  • Improved data/information systems
  • E-resources available for all symptoms
  • Communication between professionals improves
  • Online booking systems improved
  • Help is consistent
  • ORCHA is used more efficiently
  • Accessible up to date website with options
  • Vlogging used more
  • Digital groups used more
  • A virtual tour of Mental health services at whitegate drive
  • Apps by prescription
  • Ipads to help communicate how may mind works
  • Promote links such as mind ed
  • I was able to select who supported me
  • I found the tools to feel better
  • Only sharing what needs to be shared
  • Single point of access
  • No geographical barriers
  • Apps are tested and NHS approved
  • CAMHS app that has everything on there that we need
  • More prevention on mental health issues prior to CAHMS
  • Can access services 365 days a year
  • Directory of services and availability with easy access
  • More understanding in school
  •  

WHAT 5 THINGS WOULD YOU FIX?

 

 

 

WHAT DOES GOOD LOOK LIKE?

 

HOW DO YOU FEEL AFTER THE EVENT

  • Hopeful
  • Inspired
  • Tired but positive
  • Hopeful
  • Old!
  • Confused
  • Hopeful
  • Hungry
  • Hopeful and excited
  • Optimistic
  • I believe it when I see it
  • Excited
  • Excited
  • Optimistic
  • Concerned
  • Hopeful this insight os used well
  • Hopeful
  • Grateful for the sharing
  • Welcomed
  • Hopeful
  • Motivated
  • Excited
  • Hopeful
  • Spoke to nice people
  • Glad that changes are happening
  • Upbeat
  • Let’s do it
  • Inspired
  • Up for the challenge
  • Inspired
  • Proud
  • Young people will be helped
  • Hopeful
  • Optimistic
  • Energised
  • Hopeful but not sure if an ideal solution can be found
  • Hopeful that change will be made things will be improved
  • Hopeful, but unsure how all of it will happen
  • Not sure if there is an answer or money available
Hide this section
Show accessibility tools